{"id":95713,"date":"2010-05-05T00:00:00","date_gmt":"2010-05-05T05:00:00","guid":{"rendered":"https:\/\/beta.pewresearch.org\/pewresearch-org\/2010\/05\/05\/the-power-of-data-and-the-power-of-one\/"},"modified":"2024-04-14T04:17:42","modified_gmt":"2024-04-14T09:17:42","slug":"the-power-of-data-and-the-power-of-one","status":"publish","type":"post","link":"https:\/\/beta.pewresearch.org\/pewresearch-org\/internet\/2010\/05\/05\/the-power-of-data-and-the-power-of-one\/","title":{"rendered":"The Power of Data and the Power of One"},"content":{"rendered":"<p class=\"wp-block-paragraph\">I am struck, once again, by the power of data and <a href=\"http:\/\/www.listen-up.org\/htm\/matters.htm\" target=\"_blank\" rel=\"noopener noreferrer\">the power of one<\/a>.<\/p>\n\n<p class=\"wp-block-paragraph\">Carlos Rizo, Chief Imagineer of the <a href=\"http:\/\/innovationcell.com\/\" target=\"_blank\" rel=\"noopener noreferrer\">Health Strategy Innovation Cell<\/a>, posted this <a href=\"http:\/\/twitter.com\/carlosrizo\/status\/13273274639\" target=\"_blank\" rel=\"noopener noreferrer\">very intriguing tweet<\/a> on May 2:<\/p>\n\n<blockquote class=\"is-layout-flow wp-block-quote-is-layout-flow\">\n<p>The power of open data: To find problems in complicated environments, and possibly even to prevent them from emerging.<\/p>\n<\/blockquote>\n\n<p class=\"wp-block-paragraph\">Clicking through, I saw it was a quote from this eye-popping post: <a href=\"http:\/\/eaves.ca\/2010\/04\/14\/case-study-open-data-and-the-public-purse\/\" target=\"_blank\" rel=\"noopener noreferrer\">Case Study: How Open data saved Canada $3.2 Billion<\/a>. The writer concludes (emphasis added):<\/p>\n\n<blockquote class=\"is-layout-flow wp-block-quote-is-layout-flow\">\n<p>When data is made readily available in machine readable formats, more eyes can look at it. This means that <b>someone on the ground<\/b>, in the community (like, say, Toronto) who knows the sector, <b>is more likely to spot something a public servant in another city might not see<\/b> because they don&#8217;t have the right context or bandwidth.<\/p>\n<\/blockquote>\n\n<p class=\"wp-block-paragraph\">Where have we heard that before? How about <a href=\"http:\/\/www.acor.org\/epatientswiki\/index.php\/Summaries\" target=\"_blank\" rel=\"noopener noreferrer\">every e-patient story<\/a>, um, ever? Or, as Regina Holliday recently <a href=\"http:\/\/reginaholliday.blogspot.com\/2010\/04\/access-to-electronic-medical-record_144.html\" target=\"_blank\" rel=\"noopener noreferrer\">testified<\/a>, &#8220;I may not be an expert at my husband\u2019s disease, but I am an expert when it comes to my husband.&#8221; That&#8217;s the power of one person, to care so much about someone that they will read his entire medical record.<\/p>\n\n<p class=\"wp-block-paragraph\">If someone is motivated enough to dig, interested enough to analyze, and knowledgeable enough about their chosen topic to see data with fresh eyes, they can start a revolution on a small scale (like preventing medical error for a loved one) or on a large scale (like exposing widespread corruption).<\/p>\n\n<figure><img decoding=\"async\" alt=\"\" title=\"More...\" src=\"http:\/\/e-patients.net\/wp-includes\/js\/tinymce\/plugins\/wordpress\/img\/trans.gif\"><\/figure>\n\n<p class=\"wp-block-paragraph\">The Pew Internet Project recently released an in-depth look at <a href=\"https:\/\/beta.pewresearch.org\/pewresearch-org\/internet\/Reports\/2010\/Government-Online.aspx\">Government Online<\/a> in which we found that 40% of U.S. internet users (age 18+) have gone online for raw data about government spending and activities. (Note that we released the <a href=\"https:\/\/beta.pewresearch.org\/pewresearch-org\/internet\/Shared-Content\/Data-Sets\/2009\/December-2009--Government-Online.aspx\" target=\"_blank\" rel=\"noopener noreferrer\">data set<\/a>, too.)<\/p>\n\n<p class=\"wp-block-paragraph\">Some say this is just the beginning, which is why we conducted the survey, hoping to pick the topic while it&#8217;s ripening. Others say there&#8217;s a limit to the number of people who will ever want to crunch data. See, for example, Adam Bosworth&#8217;s <a href=\"http:\/\/e-patients.net\/archives\/2010\/05\/health-geek-radio-adam-bosworths-straight-talk-express.html\" target=\"_blank\" rel=\"noopener noreferrer\">recent speech<\/a>, in which he says most Americans don&#8217;t want data per se, but want to know how it fits in to their lives.<\/p>\n\n<p class=\"wp-block-paragraph\">Now comes the <a href=\"http:\/\/sunlightlabs.com\/contests\/designforamerica\/\" target=\"_blank\" rel=\"noopener noreferrer\">Design for America contest<\/a>, being run in conjunction with the <a href=\"http:\/\/www.gov2expo.com\/gov2expo2010\" target=\"_blank\" rel=\"noopener noreferrer\">Gov 2.0 Expo<\/a> and in celebration of the U.S. <a href=\"http:\/\/www.whitehouse.gov\/open\" target=\"_blank\" rel=\"noopener noreferrer\">Open Government Initiative<\/a>. (Full disclosure: I am on the Expo&#8217;s program committee and hope that it will be, like last year, a one-stop shop for cross-disciplinary inspiration.)<\/p>\n\n<p class=\"wp-block-paragraph\">On the front burner for health geeks, of course, is the <a href=\"http:\/\/www.hhs.gov\/open\/plan\/opengovernmentplan\/initiatives\/initiative_1.html\" target=\"_blank\" rel=\"noopener noreferrer\">Community Health Data Initiative<\/a> from HHS.<\/p>\n\n<p class=\"wp-block-paragraph\">Now, HHS <a href=\"https:\/\/sites.google.com\/site\/opengovtplans\/home\/final-rankings-1\" target=\"_blank\" rel=\"noopener noreferrer\">did not receive a perfect score<\/a> from a citizen group evaluating its open government plan, but it is attracting talent, namely\u00a0 <a href=\"http:\/\/www.tedeytan.com\/\" target=\"_blank\" rel=\"noopener noreferrer\">Ted Eytan<\/a> and <a href=\"http:\/\/reginaholliday.blogspot.com\/\" target=\"_blank\" rel=\"noopener noreferrer\">Regina Holliday<\/a>. Check out their plan for <a href=\"http:\/\/www.tedeytan.com\/2010\/05\/05\/5309\" target=\"_blank\" rel=\"noopener noreferrer\">unlocking hospital data together<\/a> and think about how <i>you <\/i>can throw some logs on the data fire.<\/p>\n\n<p class=\"wp-block-paragraph\">Also, think about attending &#8211; or at least following updates from &#8211; some of the public service\/data geek conferences coming up this spring:\u00a0 <a href=\"http:\/\/www.gov2expo.com\/gov2expo2010\" target=\"_blank\" rel=\"noopener noreferrer\">Gov 2.0 Expo<\/a> (May 25-27); <a href=\"http:\/\/personaldemocracy.com\/pdf-conference-2010\" target=\"_blank\" rel=\"noopener noreferrer\">Personal Democracy Forum<\/a> (June 3-4); <a href=\"http:\/\/www.health2con.com\/dc-2010\/\" target=\"_blank\" rel=\"noopener noreferrer\">Health 2.0 Goes To Washington<\/a> (June 7). These are just the three that I know about: What other meetings fit this description? Where else is the data revolution taking place?<\/p>\n\n<p class=\"wp-block-paragraph\"> <em>Join a <\/em> <a href=\"http:\/\/e-patients.net\/archives\/2010\/05\/the-power-of-data-and-the-power-of-one.html#comments\" target=\"_blank\" rel=\"noopener noreferrer\"> <em>discussion <\/em> <\/a> <em>about this commentary on e-patients.net.<\/em> <\/p>","protected":false},"excerpt":{"rendered":"<p>If someone is motivated enough to dig, interested enough to analyze, and knowledgeable enough about their chosen topic to see data with fresh eyes, they can start a 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