{"id":95855,"date":"2009-10-05T00:00:00","date_gmt":"2009-10-05T05:00:00","guid":{"rendered":"https:\/\/beta.pewresearch.org\/pewresearch-org\/2009\/10\/05\/e-patients-social-media-and-cancer\/"},"modified":"2024-04-14T04:17:48","modified_gmt":"2024-04-14T09:17:48","slug":"e-patients-social-media-and-cancer","status":"publish","type":"post","link":"https:\/\/beta.pewresearch.org\/pewresearch-org\/internet\/2009\/10\/05\/e-patients-social-media-and-cancer\/","title":{"rendered":"E-patients, social media, and cancer"},"content":{"rendered":"<p class=\"wp-block-paragraph\">The National Cancer Policy Forum at the Institute of Medicine hosted a <a href=\"http:\/\/www.iom.edu\/Activities\/Disease\/NCPF\/2009-OCT-09.aspx\" target=\"_blank\" rel=\"noopener noreferrer\">workshop<\/a> to examine the elements of a rapid learning health care system for cancer that includes patient-centered quality, value, safety, and innovation.<\/p>\n\n<p class=\"wp-block-paragraph\">Susannah Fox presented the Pew Internet Project&#8217;s latest findings on the internet&#8217;s impact on health and health care, including an early look at new data showing\u00a0how people living with chronic conditions gather and share information online. Joining her on the panel: Simone Sommer, MD, MPH, and Josh Sommer, <a href=\"http:\/\/www.chordomafoundation.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">The Chordoma Foundation<\/a>; Gilles Frydman, <a href=\"http:\/\/www.acor.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">Association of Cancer Online Resources<\/a>; Jamie Heywood, <a href=\"http:\/\/www.patientslikeme.com\/\" target=\"_blank\" rel=\"noopener noreferrer\">PatientsLikeMe.com<\/a>.<\/p>\n\n<p class=\"wp-block-paragraph\">Read Susannah&#8217;s summary of the workshop: <a href=\"http:\/\/e-patients.net\/archives\/2009\/10\/superheroes-and-rock-stars-at-the-institute-of-medicine.html\">Superheroes and rock stars at the Institute of Medicine<\/a>.<\/p>\n\n<p class=\"wp-block-paragraph\"><iframe loading=\"lazy\" title=\"Research on e-patients and the use of social media for health\" src=\"https:\/\/www.slideshare.net\/slideshow\/embed_code\/key\/tV6igWnFr46EqJ\" width=\"427\" height=\"356\" frameborder=\"0\" marginwidth=\"0\" marginheight=\"0\" scrolling=\"no\" style=\"border:1px solid #CCC; border-width:1px; margin-bottom:5px; max-width: 100%;\" allowfullscreen> <\/iframe> <div style=\"margin-bottom:5px\"> <strong> <a href=\"https:\/\/www.slideshare.net\/PewInternet\/research-on-epatients-and-the-use-of-social-media-for-health\" title=\"Research on e-patients and the use of social media for health\" target=\"_blank\">Research on e-patients and the use of social media for health<\/a> <\/strong> from <strong><a href=\"https:\/\/www.slideshare.net\/PewInternet\" target=\"_blank\">Pew Research Center&#39;s Internet &amp; American Life Project<\/a><\/strong> <\/div><\/p>","protected":false},"excerpt":{"rendered":"<p>Susannah Fox presented the latest findings on the internet&#8217;s impact on health and health care, including an early look at new data showing how people living with chronic conditions gather and share information 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